What is the impact of this research?
Multimedia advocacy practices and the RIX Wiki software have improved the education and advocacy of young people with learning disabilities in transitions into adulthood, enhanced services' accessibility, and addressed issues around information sharing across services.
Work with the Social Care Institute for Excellence addressed the need for easy-to-understand information about community services for adults with learning disabilities. A group of experts reviewed services and shared their findings with peers using the RIX Wiki. This resulted in the development of accessible websites for six London councils.
Additionally, commissioned research with NHS Trusts and health and social care teams enhanced the RIX software for use in Health and Care Plans, Hospital Passports, Mental Health Wellbeing Plans and a multimedia 'NHS Family & Friends Test' for Primary Care.
During the Covid-19 pandemic, the RIX Centre team worked with the London Borough of Redbridge and three care provider organisations to introduce a RIX Wiki toolkit for people with learning disabilities, receiving community-based care services to help reduce social isolation and maintain links with professionals during periods of lockdown and the closure of community services.
Since 2014, the RIX Wiki has been used in 65 UK schools and colleges, resulting in 2,890 learners engaged in the person-centred planning process. Evaluation has evidenced significant improvement in communicating individuals' views and wishes, better communication between home, schools and professional services such as NHS therapies and social work and improved provision of local information to support their journey to adult life in the community. The use of the RIK Wiki in schools and colleges has significantly developed the 'pupil voice' and informed self-advocacy for those with learning disabilities.
Inclusive education for employability, independent living and social inclusion has also been a focus of five large-scale EU projects undertaken by RIX since 2014. They engaged 1,200 learners with learning disabilities in face-to-face workshops and reached thousands more via these projects' accessible multimedia learning resources. These resources have been translated into seven languages and distributed freely online. School and college leavers' employability has improved by creating personal multimedia CVs that help prospective employers understand learners' support needs alongside their skills and abilities.
Professor Minnion's action research has resulted in 20,000 annual RIX Wiki accounts for use with adults, training and consultancy across 20 UK local authorities, NHS services and social care providers. In total, 6,019 professionals and parents/carers have completed training over this period, with 75 per cent provided via face-to-face provision.
This work has transformed traditional care and support practices, pioneering digital person-centred tools for the first time for 88 per cent of trainee participants. This has driven culture change for organisations struggling to adopt personalised care provision over legacy paper-based processes that interpreted assessment as a one-off service-led process that failed to engage effectively with the voice of young people and their carers. RIX software has also helped positively engage parents and carers, which local authorities report has helped reduce adversarial meetings and costly tribunals, saving public costs.